Showing posts with label school division. Show all posts
Showing posts with label school division. Show all posts

Sunday, 29 May 2011

Concern Over Autism Diva Help Blog - Need Your Help

I got a phone call from Dayton's school division to discuss their concern over my blog.  When I met with the lady, she was straight with me.  I like that.  There was no mistaking her intentions, and I felt comfortable telling her my own intentions with this blog.  Do I like criticism?  Nope.  But there's something about 'constructive criticism' that I don't mind.

The lady was concerned about the blog's affect on my relationship with Dayton's school.  I explained to her that after the principal retires, I basically won't have a relationship with the school, and so far, even with the principal there, the relationship has been very strained.  While I feel comfortable talking to the principal, I can not work with the guidance counselor, and as a result of her constant disrespect of me as human being, I'm having Dayton bussed to and from school, so that I don't have to enter the school.  How difficult do you think it is for me to have to send Dayton back there, day after day, when I myself feel so uncomfortable?

I do feel bad about one of my posts regarding the principal, where I titled the post Email To Ms Cruella Deville aka Dayton's Principal.   The post itself I don't feel bad about at all, but I suppose the title is hurtful, and it was not my intent to hurt the principal.  I never thought the principal would read it and therefore didn't consider her feelings.  I honestly didn't expect Autism Diva Help to be this popular.  I'm still in shock that in exactly 3 months of launching Autism Diva Help, I've had just under 5,000 hits! 
Pageviews today
45
Pageviews yesterday
125
Pageviews last month
2,881
Pageviews all time history
4,878 and it's only 11:15 am on a Sunday morning!
Do I really think that Dayton's principal is or resembles Cruella Deville?
Ummmm, no.  But you gotta admit, the title is catchy and interesting.  The goal is to entice people to read my blog, not make them think 'wow, how boring, NEXT.'  My honest opinion, and I hope she reads this, is that she's the only person Dayton responds to and respects.  She actually seems to care about Dayton, where others (well, I think the resource teacher does too) don't seem to genuinely care.  I don't want her to retire, but I think if she does, she'll get bored, and hope she comes back as Dayton's aid.  She's just got a way with him that no one else does.  Dayton loves his resource teacher and seems compliant with her, but the principal has a way of stopping his naughtiness.  Not all the time, but if she's present just before Dayton starts to lose it, she's able to stop it.  If she's too late, no one can stop him.  
There is a difference between a differing point of view and respect.  I do not agree with the principal most of the time, but I do respect her.  My 'beef,' I explained to the school division is not with the school Dayton attends, it's with the education system as a whole.  I understand that Dayton's school is working within the parameters they are given by the government.  I understand that they are doing everything they can within their means.  The problem is that it's not enough.  Who's fault is that?  THE GOVERNMENT.  Unfortunately, all I have is my experience with MY son, and can only write about Dayton and HIS experience.  Which means that I will talk about the issues he has at HIS school. So, how do we get around this?  

Well, I've got Wendy who has been a guest poster on Autism Diva Help.  I'd like more people to get involved not just in reading the blog, but in writing it too.  For those of you too shy to be an 'author,' you can email me your story.  I promise to change the names to ensure privacy.  For those of you willing to give blogging a shot, email me with your google account and I will add you to the blog as an author.  Dads are welcome too...  I wonder what would be a male equivalent to diva?  Maybe we can change the blog name?  Or edit it to include dads?  

Email me with your thoughts!!!  autism.diva.help@gmail.com.  If we really want to raise awareness to the global problem of education of our children, then we need to talk about our global experiences.  Help me do this.  Autism Diva Help is not MY blog, it's OUR blog.  A blog for all parents concerned with their children's education and how they are treated!!!


In the mean time, consider yourselves hugged,

Lou

Monday, 18 April 2011

The IEP Meeting

I had blogged about Autism Winnipeg a couple of weeks ago, and how the creator of the Autism Winnipeg Facebook page met up with me to talk about Autism Winnipeg.  Instead of discussing it, she insisted on talking to me about Dayton, and wanted to prepare me for Dayton's upcoming IEP meeting which would be taking place a few days after our talk.  Her pep talk helped immensely, and I took her advice literally:  "I am Teflon!"  Acknowledge the school's remarks and deflect right back at them.  Teflon.

Armed with Marni's pep talk and her image of Teflon, off I went to the Dayton's IEP meeting along with our CFS social worker, Brenda, who has been involved in our family strictly to advocate for Dayton's rights and education in the St. James School Division.  Brenda's like a fire cracker, and I felt confident walking in with her along with Diana, Dayton's social worker for Children With Special Needs And Disabilities.

When we enter the board room, we are met by the school division's special needs co-ordinator.  This will be the first time she'd sit it on any of Dayton's IEP meetings, thanks to to fire cracker social worker from CFS.  Somehow, her word carries more weight than mine.  There's also the school division's child psychologist, again, her first time involved in Dayton's IEP meeting as well.  The Occupational Therapist and Speech Therapist are not available for the meeting.  Surprise, surprise!  The Occupational Therapist has only observed Dayton's classroom once, and the Speech Therapist has not yet seen Dayton, as far as I know.  The principal, guidance counselor, Dayton's classroom teacher, his aid, and the resource teacher were also present.

The guidance counselor, a real piece of work, sits there with a fake smile on her face.  Her and I do not get along.  She seems to think I'm some how beneath her, and she thinks the same of my husband.  She's the one who's called CFS on myself and my husband claiming that Dayton has access to Glen's hunting rifle, and that Dayton was going to come to school and shoot them all on the first call (the principal had also called the police), and the second time she called CFS because Dayton had cut a picture of a man bent over and another man with a paddle tapping his tushy.  Apparently Dayton told them that "daddy paddles my butt" and they took him literally (who's autistic now?!).  This guidance counselor is also the one that sent me the email I had posted on the blog asking me whether or not I feed Dayton breakfast...  She thinks that Glen and I have created (and I quote) "a hostile environment" for Dayton at home by allowing him to play with water guns in the summer, Nerf guns all through the year and of course because Glen has played the "Call of Duty" video game with Dayton.  While I am not a big fan of guns, and may not agree with Dayton playing "Call of Duty" with his dad, it doesn't seem to matter where we go:  the play ground, the swimming pool, or his 6 year old buddy's house, we run into the same problem.  The boys and girls at the swimming pool are playing with water guns, the boys on the playground have brought out their toy guns and his 6 year old buddy plays "Call of Duty" all the time. 

Anyways, back to the IEP meeting...
That woman (the guidance counselor)!!!  Unbelievable!!!  Grrrrrrrr...  I guess there's just no pleasing me I suppose, but that woman!!!  Pardon the expression, but I hate it when people try to blow smoke up my butt!!!

Remember the email I had posted on the blog titled "Email to Ms. Cruella Deville, aka Dayton's Principal?"  The one where I said "I walked away from the meeting feeling as though no matter what I say, there will always be that unspoken insinuation that at the core of of Dayton's behavior problem is my parenting.  It has become exhausting to prove to your staff that I am a loving and caring parent, who is trying to instill values and morals in my child."  Well, I think the principal had a little talk with her staff perhaps, because the guidance counselor started the meeting by telling me that she wanted me to know that the entire staff of the school had the utmost respect for me as a parent.  That they were impressed with how I am always advocating for Dayton and that I refuse to give up on him.  I sat there stunned, first at her claim of respect, second at the thought of giving up on my son?!  How dare she voice that out loud? I'm not going to get into the profanities that had run through my head.  This woman sat across the table from me, with this big fake smile on her face, putting on a show for whom?  Certainly not me, she's made it abundantly clear that I am the scum at the bottom of her shoe by her past actions...  Actions speak louder than words she was uttering now.  I'm thinking she wanted to impress Brenda or the her boss from the school division?  Or had the principal forced her to complement me?  Either way, it was not genuine, and definitely not appreciated.  If you respect me, then you will treat me and my child with respect at all times, not just in front of your employers!!!  It took every ounce of strength not to reach across the table and wipe the smug grin off her face.

The show continued on with the guidance counselor telling us all how she thought about Dayton and I during her holidays...  While cleaning out her basement, she had come across a book she used to read to her children, and this children's book reminded her of Dayton and I, then proceeded to read it to us all.  Yes...  she read us all a children's book during the IEP meeting.  Every other IEP meeting we've had took half an hour, this IEP meeting took well over an hour and a half because the first half hour was spent on telling me how much the school staff respects me and reading a children's story...  I had to leave an hour into the meeting to meet Dayton's bus.  None of my questions about his IEP had been answered and the meeting turned into a non meeting as usual.  Again, nothing is accomplished.

Turns out after I left the meeting to pick up Dayton, the guidance counselor showed her true colors to everyone present when Diana had asked for a meeting of all professionals involved in Dayton's education.  The woman LOST it!  Brenda had called me later to let me know that she refused to attend this meeting, and that her face turned red and her lips turned white in anger.  Had it not been for the school child psychologist agreeing with Diana that this meeting is a good idea, the school would never had agreed to it.  Their meeting is next Thursday, and I'm a little stressed over it.  It's a meeting for professionals only, which means I am not to attend the meeting.  If I could be a fly on the wall for this meeting...  Brenda promised to put the guidance counselor in her place during this meeting if she is to exhibit the same type of behavior she had during the IEP meeting...

The guidance counselor also practically "sneered" at Brenda, telling her she knows I've been looking at other schools for Dayton.  Brenda  calmly gave the group an analogy of going to the same grocery store wanting to buy apples, but the store never carried apples.  The store than should not be upset with you for visiting the grocery store next door to purchase your apples, should it?  The St. James School Division only has one Occupational Therapist, and this therapist works for the whole division and works only part time, which is why Dayton has not received any therapy.  Same goes for the speech and the physical therapist.  If the school can not meet Dayton's needs, then we need to explore other schools, right?





Please consider a prayer for us. 
Consider yourselves hugged!!!

Lou

Thursday, 24 March 2011

I Am Ninety-Nine Percent Angel... But, Oh, That One Percent!!!

For once, I was actually looking forward to going to the interview with Dayton's teacher.  I really, really was!  The principal, while calling me with concerns regarding Dayton's behavior, has been assuring me that Dayton has been doing so much better than last year and that he has been working much harder than he has in the past.  Furthermore, Dayton had only had one in school suspension this year, as compared to being suspended and sent home for his suspension once a month like clockwork last year.  So I was expecting things to go well... 

Due to some recent emails flying about as a result of our CFS worker who is advocating on Dayton's behalf in the school system, I felt a little apprehensive about walking into this meeting alone.  (Brenda, our CFS worker is forcing an IEP meeting with the school division's special needs coordinator and all involved in Dayton's education to be present.  This will be the first time ever to have everyone together for Dayton's IEP meeting, which Dayton's school thinks is a waste of time).  So I invited Diana, Dayton's social worker from Children with Special Needs and Disabilities to tag along with us.  Thank God I did.

We get to the meeting on time, however Dayton's teacher is busy with other parents.  No problem.  Dayton is excited to show Diana and I his desk, so the three of us sit down and look through Dayton's portfolio.  With the exception of a few sheets of math work, I see nothing new since our conference in November.  There's a sheet of instructions for us to go to the gym for our child's video portfolio and then to the music class.  The three of us go for our tour.

When we get to the gym, we're told Dayton has not done his video.  Awkward...  We leave the gym and head out to the music class.  The door is locked.  Awkward...  Diana and I just kind of look at each other and tell Dayton to lead us back to his class to see what else we can find, crossing our fingers and hoping his teacher is available to see us now.

Mrs. D is waiting for us at the classroom door, and she's not smiling.  U-oh...  Should have been my first clue to run.  The three of us sit around a little half circle table in tiny little chairs.  I'm secretly wondering if I could quickly grab a second or a third one to make myself a little more comfortable.  The teacher began by asking if I have any questions...  Really?  So I ask why Dayton's portfolio has little more than what I saw in November...  She informs me that Dayton has done little work, preferring to play games and draw guns and play with paper figures.  Whaaaaaaat???

Then she informs me that Dayton is a bully.  Apparently my little man's been bugging one child in particular, on a regular basis, singling him out from the rest of the class.  A little boy, little Johnny, yes the same one with the back pack I talked about in my last post titled "I would if I Could But I Can't.  

Now, I have been aware that there has been a problem with this little boy in the past, as most of the phone calls I've received this year from the principal have been about Dayton and little Johnny.  Dayton has flushed little Johnny's toy down the toilet, Dayton bit little Johnny, Dayton bent four of little Johnny's fingers backwards...  Johnny, Johnny, Johnny...  At home, I do what I call "Drawing Dayton's Story."  I find it works well as Dayton is very visual, something very common with children on the spectrum.  All you need is a piece of paper and pen and be able to draw stick men.  That's about the extent of my artistic ability.  You need to have some background information on the situation, and ask the child questions, limiting the questions to:  who, what, where, when, and last question is how.  Never ask why as they just don't seem to be able to answer this question.  Whenever I ask Dayton "why," I always get an "I don't know."

Anyways, the last incident I had been aware of in terms of Dayton and Johnny, I drew Dayton's story out, then we drew a poster on bullying and wrote the word bully in a circle then drew a red line across it representing "no bullying."  I have the poster on the wall in the hallway across from Dayton's bedroom door, so every morning he sees the poster when he opens his door.  Since then, I had not heard any more bullying incidents.  When I drew out his story, it turns out there are three other children that really dislike little Johnny, and unfortunately, Dayton is wanting these little boys' acceptance.  Again, not an excuse, this is an explanation of what is going on in Dayton's mind.  The difference with typical children is that they will stop, think and evaluate the consequences vs the action and then decide what to do.  Dayton and most children on the spectrum don't have this ability if they have a deficit in impulse control as Dayton does.  So when little Jeff tells Dayton to do something, Dayton does it, because little Jeff is Dayton's friend.  He's not able to discern that little Jeff is taking advantage of Dayton and being entertained not only by little Johnny's misfortune, but also by Dayton's behavior and consequent punishment.

Getting back to Mrs D's concern of Dayton bullying little Johnny, I am dumbfounded.  I ask why I haven't received an email from her with this concern?  She tells me that if she had to email me of all of Dayton's behavioral issues, she would be writing a "Novella!"  "Excuse me?!  Are you suggesting that Dayton's behavior is impairing him from being "included..."
"Oh no, that's not it at all.  Dayton is included in everything unless he chooses not to be."  She completely misunderstood the intent of my comment, and yet she figures she's capable of understanding my child!!!  Grrrrrr...  She continues to tell me how if she was to email me on Dayton's behavior, all she would be doing is typing all day, and that I would feel picked on.  I'm thinking how this would be different from the way she's making me feel right now, but whatever.  She asks that I talk to Dayton about his behavior towards little Johnny.  When I tell her that I  have discussed this issue with Dayton in the past and that there are more children involved and began naming the said children, Mrs. D cuts me off and tells me that we're not going to discuss the other children and for me to discuss this further with Dayton at home.  Well then!  How am I supposed to explain what Dayton is thinking when you won't hear what I have to say?!  Also, I need specific examples of Dayton's behavior which Mrs. D is not able to provide me with, other than Dayton walks up to little Johnny and flicks him in the head...  That's it.  No more information.  What the hell am I supposed to do with that?  Helllllllooooooo???  I can't just discipline Dayton for 3 months of behavior I can not describe to him and educate him how to do things differently!!!

So we go home.  The ride home is very, very silent.  I'm confused.  What happened to all of Dayton's hard work the principal was telling me about?  What the hell?  Were we discussing my son or someone else?  When we get home, I tell Dayton to sit down at the kitchen table and get ready to tell me his story.  I pull out a sheet of paper and pen.  I begin by drawing his classroom, which is a simple big box with the teacher's desk and the door to the classroom.  And I begin the questions to finish the drawing of Dayton's story.

Where is your desk?  Who sits beside you?  Where is your teacher's desk?  Where is little Johnny's desk?  Who sits with little Johnny?  What subject is it?  How are you feeling?  Who are you listening to?  What is he/she telling you?  When do you walk up to Johnny?  Who do you pass by as you walk to him?  What do you do?  How does this make you feel?  How does this make you feel?  What does the class do when this happens?  Who's crying?  Who's happy?  Who's sad?  Who's laughing?  As Dayton answers my questions, I start drawing his answers and always ask:  "Like this?" to make sure I've got it right. 

Dayton's story:  Little Jeff asks him to flick little Johnny in the head every day.  Little Jeff, Pete and Odie don't like little Johnny, and since Dayton practically worships these little boys, his perception is that the whole entire class doesn't like little Johnny.  When Dayton's aid tells Dayton to get ready for the bus at the end of the day, Dayton walks around the aid, walks across the classroom to little Johnny, flicks him in the head, and all the children laugh.  This enforces to Dayton that he is doing the right thing and that the kids like him.  It is important to Dayton that he is liked and accepted, and he wants to be funny.

I do my best to explain to Dayton that there are other ways to be funny and liked.  I convince him that telling jokes is funny.  So off we go and buy some kid joke books.  I find 3 that he says he likes, and buy them.  Now to convince the school to allow Dayton to bring a joke book to school...  Off to "Mission Impossible!"

So again...  The idea of inclusion is a beautiful idea, but in reality, Dayton is experiencing cosmetic inclusion, not genuine, and believe you me, there IS a difference!!!  And why is it that the school only give the cosmetic inclusion to our kids?  Because they don't UNDERSTAND the autism spectrum!  I somehow need to fix this!!!



Consider yourselves hugged!

Lou